Practical ways to prevent wandering, respond when someone goes missing, and support people with autism, developmental disabilities and dementia, gathered from our work and from trusted national organizations.
People with autism, developmental or cognitive disabilities, Alzheimer’s or another dementia are at higher risk of leaving a safe place. Drowning and traffic are the leading dangers when they do.

Leaving a safe or supervised place without permission, often quickly and with a purpose, without understanding the danger.
Moving away from safety in a way that is often aimless or disoriented, common with memory loss.
Noise, crowds, lights or a stressful moment can feel overwhelming, and leaving is a way to escape it.
A favorite place, water, a train, an animal or anything of strong interest can draw a person away.
With dementia, a person may not recognize where they are, try to go to an old home or job, or get lost on a familiar route.
people living with dementia will wander at least once, according to the Alzheimer’s Association.
of people with autism are at risk of wandering from safety, according to national autism safety organizations.
A few words during the call can change how responders approach you or your loved one. Here is what to say, what to have ready and what to do when help arrives.
First, give the address of the emergency, your name and your phone number. Then say:
“I’m calling about my ______, who is registered with the S.A.V.E.S Project. Their participant number is ______.”
Calling for yourself? Say, “I’m registered with the S.A.V.E.S Project. My participant number is ______.” Say if anyone is hurt, and ask the dispatcher to share the number with responding officers.
Always call 911 first. You can always cancel if the person is found. Keep these steps where everyone in the home can find them.

After they are found, update their Wandering Profile in S.A.V.E.S CONNECT with where they went and how they got there. It helps responders find them faster next time.
Found someone who seems lost? Call 911, stay with them, and use Help a Participant if they carry a S.A.V.E.S Project ID.
Small changes at home can prevent wandering, falls and other emergencies at any age. Walk through your home with this list and check off what you have in place.

Begin with outside doors and nearby water, the biggest risks for someone who wanders. Then work through the rest a little at a time.
These are best practices. Choose what fits your home and household. Never lock someone inside alone.
Many people with autism or cognitive impairments are drawn to water and may not understand the danger. Lakes, pools, rivers, retention ponds and even bathtubs carry risk.
Knowing what someone may be experiencing helps everyone respond with patience.

Developmental disabilities affect physical, learning, language or behavior skills. They begin early in life and usually last a lifetime. Examples include autism, Down syndrome, ADHD, fragile X syndrome, cerebral palsy and hearing loss.
A person may:

Dementia is a group of symptoms, not one disease. Alzheimer’s is the most common cause. Early on, memory changes can be subtle. Later, a person may not recognize family, lose track of time and place, or struggle with everyday objects.
Caregiving tips:
New places can be exciting and overwhelming. A little preparation helps.
Use the S.A.V.E.S Project ID card, lanyard tag or QR stickers, plus an ID bracelet or GPS device if you have one.
Pack comfort items and keep routines as steady as you can.
Schedule breaks, avoid crowded or loud places when possible, and share plans with everyone traveling.
Use visual schedules or social stories for autism. Carry a recent photo for someone with dementia.
Scammers, driving changes and caregiver stress can affect anyone. Go over these tips on your own or with someone you trust.
Think you’ve been scammed? Call your police non-emergency line and your bank.
Caring for a loved one is meaningful work, and it can be exhausting. You don’t have to do it alone. Taking care of yourself helps you take care of them.
Who would care for your loved one if you were sick, hurt or away? Write it down and tell them. Need help finding support? Just ask us.
Quick reminders for calls involving a person with autism, a developmental disability or dementia. Picture cards like these help someone who can’t speak in the moment point to what they need.

Look for a S.A.V.E.S Project ID and enter the participant number in S.A.V.E.S RESPONDER.
When safe, reduce lights and sirens, approach calmly, and give extra space and time.
Use short, clear words, one question at a time, and wait for an answer. Silence is not defiance.
For a missing person with autism, send resources to nearby water, roads and rail lines right away.
Organizations we rely on for safety information. These links open their websites.
Free education, training and toolkits to prevent injury, wandering and drowning for autistic children and adults.
Visit WebsiteSafety guidance for home, wandering, driving and travel, plus support for caregivers.
24/7 Helpline: 800-272-3900
Visit WebsiteA wandering support program for people living with dementia, created with the Alzheimer’s Association.
Visit WebsitePractical safety resources for families, educators and first responders, including the Big Red Safety Box.
Visit WebsiteAutism resources for caregivers and free training for law enforcement, including Search Water First.
Visit WebsiteWhat families and first responders should do the moment a person with autism goes missing.
Visit WebsiteThis page is for general education and does not replace advice from a doctor or your local emergency services. In an emergency, always call 911.
Enrollment puts emergency contacts and what helps them in the hands of trained responders. Taking part is always free.